Aller puisque c'est moi qui ai lancé le sujet, j'ouvre le bal!
Voici un extrait du point de vue de Steven Harris, l'un des plus grands spécialistes mondiaux de lyme (stade chronique) , qui propose un éclairement très intéressant sur quels sont les patients qui guérissent et ceux qui au final n'y arrive pas malgré tous les efforts et thérapies effectuées (désolé c'est en anglais mais ça vaut la peine de le lire... )
Steven Harris:
Emotional trauma is a huge component of illness and can be a block to patients’ healing. I think that in a sense, cells hold on to memories. Doing therapies that access the subconscious mind, such as EMDR and hypnosis, can be helpful for releasing traumatic memories on a cellular level, as can Family Constellation work and psychotherapy. Really looking deep within the self to discover the spiritual causes of illness, as well as faithfully exploring and healing past memories is important.
People with Lyme often need to “go deep” in order to heal their emotional trauma.
Who Are Those That Heal From Lyme Disease?Who Are Those That Don’t?The people who tend to heal from Lyme disease are those who don’t know how sick they are. They are those who are out there doing things, living life and functioning amidst all of the adversity that Lyme disease brings into their lives. They are the ones who really push themselves to get better, which means that ironically, the most adrenally-depleted people might be those who are having the most success with their recovery. Such people go out and get sunshine every day. They stretch and do all the tasks that are required of them to heal, such as daily skin brushing, colonics and keeping a good diet. They are able to focus on their symptoms but not make the symptoms the focus of their lives.
Also, people who can roll with the punches, take things in stride, adapt to adversity, self-manage symptoms as they come up and make decisions on their own, are those who heal. They are of the sort who can make the decision to stop a supplement if they no longer need it, and to research new supplements but not base their life decisions upon what others tell them about those supplements.
They hunker down and stay in the healing process for the long haul, and can balance immediate gratification with deferred gratification.
They are open to trying new things, don’t focus on every single symptom that manifests in their bodies and don’t have to know the reason “why” for everything; for example, why certain remedies work and why certain things are happening to their bodies.
I think that it is really important for those with Lyme to have a positive attitude, too. This can be taken to a fault; some Lyme sufferers might be “happy herxing” for two years, and I think that’s ridiculous, but it’s good if they are able to adapt to adversity and to view failures as a bump in the road, instead of as a curse.
For example, the person who is able to get over a gallbladder attack, a negative reaction to a medication or an IV line complication and say, “Okay, that didn’t work, let’s try something else,” instead of becoming despondent and giving up, has an easier time healing.
Those who don’t get “stuck” in persistent thoughts of disease or who don’t get post-traumatic stress from their illness or treatments also heal faster than those who do.
Toxic partners are another block to healing. It’s extremely difficult for family members to understand what the sick person is going through, and it can be a huge detriment to that person’s healing.
Likewise, when people harbor anger, blame others, get stuck and hung up on details, or have other forms of emotional distress, their healing becomes compromised. Other impediments to healing include mold, yeast and other toxic chemicals in the environment.
Finally, people who aren’t on the Internet all of the time asking questions about Lyme disease and getting totally despondent when hearing stories about patients who kill their pastors, have an easier time healing!
The Role of Spirituality in HealingI think that there’s a spiritual component to healing that really matters. People need to feel connected to something larger than themselves, whether that something is found within a formal religion or elsewhere. If there’s a way that those with Lyme can interface with the divine, such as through prayer or meditation, then this can make a positive difference for them in their healing journey.
How Finances Affect HealingLyme disease is sadly, a disease for the rich. That financial resources are directly related to one’s pace of improvement causes me more consternation in my treatment of Lyme patients than anything else. I can do ten thousand things under the sun for them, but if financial limitations are the main thrust of their stress, then it’s really hard to get them better. If they can’t pay for probiotics, for example, or some of the main detoxification supplements, then their healing becomes complicated. It’s difficult to admit, but it’s
almost as if the wealthier patients are paving the way for the right protocols to emerge and get out there. Until a streamlined path to wellness becomes clearer, however, patients without financial resources will have a more difficult time getting better.
That said, I have some patients who, through the help of their friends, church, synagogue or family, have been able to make things happen for themselves, even when they thought that they couldn’t afford a particular treatment. They have done this by going beyond in their thinking. They tell themselves things like, “I am going to do this IV treatment and I’m not going to get stuck on the details about how it’s going to happen. I’m also not going to go bankrupt, or if I do, then I will refinance my house.”
They find a way. So I believe that those who can completely prioritize this disease and the healing process, get better. Those who say things like, “I have $2,000 and if I don’t get better after I spend all of that, then I am going to kill myself,” surely won’t get better after spending that $2,000.
The Biggest Challenge for People with Lyme DiseasePeople with Lyme disease are generally really sick, and have been this way for a long time, but their families, doctors or friends sometimes don’t believe that they are unwell and their insurance companies often won’t pay for their care. As a result, they feel isolated, as if they have been living in a twilight zone, or are going crazy. So they develop mistrust of others, and even of themselves, and they start questioning whether they are legitimately sick. The second-guessing and this burden of guilt that people develop from being so pushed aside, is the number one most difficult aspect of having Lyme disease. But truly, people with Lyme are some of the sickest people on the planet, and treatment regimens are some of the most complex that I can imagine in medicine. I have had patients on up to fifty different medications and over one hundred and fifty herbs at different times during their treatment.
Treatment regimens are so complex, but often, Lyme patients can’t even cognitively “get it together” enough to listen to instructions about what they need to do to get better. They aren’t healthy enough to manage their own care, but the only way to heal from Lyme disease is through a lot of self-management, so they are stuck in all these catch 22’s, and there are just a few ways out. So it can be very beneficial to have friends and family members who can help them through it all.
How Friends and Family Can Help the SickFriends and family of the sick should read Pamela Weintraub’s book, Cure Unknown, and watch the documentary, Under Our Skin. They should go to Lyme disease conferences on occasion and do research on Lyme. They should accompany their loved one to doctor’s appointments at least some of the time, and become highly informed about what this disease is about, and realize that it doesn’t just affect the patient, but the entire family.
One of the biggest problems with Lyme disease sufferers who have partners is that their libido is so low, or they hurt, so they don’t want to have physical contact with their healthy partner. People usually marry one another when they are healthy, and even though they make promises to be there for each other “in sickness and in health,” during times of sickness, the healthy spouse often gets “caregiver fatigue,” or becomes angry and frustrated at the partner who is sick. Partners need to be aware of this and seek counseling to deal with it, so that they don’t take these feelings out on their loved one, who is already suffering greatly as a result of illness.
Family members and partners of Lyme sufferers need to realize that counseling is not only for the sick, but also for healthy people trying to stay healthy. That said, caregivers also need to take time off from care giving; spending occasional weekends or vacations alone can restore their capacity to help their loved one.
Finally, it’s important that parents of children with Lyme disease not make their child’s illness the overriding, defining characteristic of the family.
Parents tend to become overwrought with stress when their kids get Lyme, but they need to remember that their kids have hopes, aspirations and desires outside of their illness. The kid is not just a sick person; there’s still a lot more to him or her than the illness. Of course, parents need to ask their children how they are feeling, and if they are hurt or tired, but they shouldn’t make the child’s illness the central defining characteristic of their relationship.
They need to find a healthy balance in their conversations and attitudes toward their child, which can be difficult.
How Long Does It Take to Heal from Lyme Disease?Most of my patients need treatment for anywhere from nine months to three years, if they do everything right. If they comply with their treatment regimens, then most of them should get 90% or more better
) sur l'impact de nos émotions et de notre "moral" dans le cheminement quotidien de nos maladies chroniques.
![[img]images/icones/icon13.gif[/img]](./images/smilies/icon13.gif "soleil")
.Repose toi bien ce week-end.
![[img]images/icones/icon10.gif[/img]](./images/smilies/icon10.gif "smile")
). Je vais commander les cures de Clark.